Tuesday, February 15, 2011

Here We Go Again...

My dear friend Roberta was able to take me to my radiation appointment yesterday, and I was thinking that I would be starting my treatments then, but it ended up being the consultation. Duh, I know that they can't start me immediately, they have to align everything perfectly and that takes a few days. So, yesterday I had the CT Scan and they put three more tattoos on my skin since they can't go off of the old markings due to the fact that they're treating a completely different area. I start radiation treatment on Thursday and I will go for two weeks straight.

I also asked Dr. Pant if I could see my Bone Scan and he had no problem with showing me, so I was able to actually see the hot spots, and over the course of a year (since the last time I had a scan), the cancer has definitely grown in some areas. I was able to see my left hip (and it's actually the ball & socket) that has the cancer, and I asked about my right hip since I saw some shading on it also, and he said that I did have some in there also. I tried my best to read some of the report that accompanied the scan and he was scrolling through it kind of quickly, but I was able to see that it said something about my sinuses. I asked him about that and he said it's either an infection or that I indeed had some cancer there too, but he assured me that I didn't have any in the skull. Thank God. After thinking about it later on, I think I'm going to ask Dr. Hui for a copy of my scan so that I can look at it in closer detail. Heck, it's my body, they should be able to give me a copy. It's strange how they don't point out all of the cancer, that I have to ask about it in order to find out. I just don't understand sometimes. What would have happened had I not emailed Dr. Hui about my sore hip? And how long has the cancer been in there? It seems to have come on so suddenly. Why hadn't she requested a scan in a whole year? I understand the risk of doing it too often, but still. It makes me wonder about things sometimes.

An update on Jordan...she went to see her "Clinical Psychologist" today and although it's not going to happen over night, I believe it did some good for her to talk with somebody. He made her another appointment in a month and gave her some tools to help in the meantime. She also has a support group at school that she will continue to go to for additional help.

I will continue to have FAITH and the STRENGTH it takes to carry on, but please keep me in your PRAYERS. I know the Lord is listening and although I don't know when my time will be up, I'd like to make the best of it in the meantime and share some lasting memories with my loved ones.

Peace to you all ♥ Love, Genie

3 comments:

  1. Hi Genie, I'm so glad I got to go with you to your appointment. It was really nice to spend some time visiting and catching up. Our children are growing up so fast. I'm glad Jordan's appointment went well too, I think that is a good thing. I will be praying for this radiation to knock out the cancer in your hip and I pray that you won't be so sick this time. I'm so proud to be your friend and I'm so thankful you allowed me to go with you to your appointment. Nathan and Katrina have an ultrasound tomorrow and may find out what the baby is... I mean boy or girl, pretty sure it is a baby! I love you and I'll talk to you soon. Call me if you need ANYTHING.

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  2. Good Morning, Genie and ALL MARKS!!!!
    Your continued spirit is an inspiration to ALL of us. Continued prayers and other good wishes are on the way.
    Our ANGEL is watching and getting ALL of her senior angels to help you through this crisis.
    LOVE,
    Charley

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  3. Genie,
    Good for you! As I said the other night, we have to be our own advocates to navigate the health care system, unfortunately. I agree it does not make sense, but we could sit and wish it made sense or take our health care into our own hands. I am proud of you for asking to see the scan and YES, you should be able to have a copy of the report. I am happy to go through it with you to define anything you don't know.

    Were you able to get acupuncture and the meds set up in prep for radiation?
    I love you lots!

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